Turkish Journal of Geriatrics
2010 , Vol 13 (Supplement)
QUALITY OF LIFE OF PATIENTS WITH DEMENTIA AND THEIR CAREGIVERS
Hacettepe Üniversitesi Tıp Fakültesi Psikiyatri Anabilim Dalı ANKARA
The quality of life (QOL) concept, consists of the perception of well-being
regarding physical, psychological, social domains and life satisfaction. Health related
quality of life (HRQL) is a multi-dimensional construct which consists the
several aspects of general health perception. The nature of dementia can make
self-report difficult, however as HRQL is a subjective phenomenon, proxy reports
provide limited information. Studies reveal that patients with severe dementia
are able to talk about their QOL. Patients may not have concern regarding the
cognitive impairment, therefore it is proposed that health status may not effect
QOL. Self and proxy report assessments should be included both, in measures
of HRQOL in dementia patients. Caring for dementia patients is associated with
decreases in QOL of caregivers. Behavioural, cognitive, and functional impairments
of patients cause higher levels of burden. Distress increases with intensity
of care and declining coping and support resources. Although useful intervention
strategies exist, economic and policy barriers prevent caregivers from accessing
needed help. QOL of care givers determine the survival of patients and time to
institutionalisation.
Keywords :
Dementia/ psychology; Caregivers/psychology; Disability Evaluation; Quality of life/ psychology